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"Tú puedes parar la violencia
cuando crees en la adolescencia y la juventud"

Jueves, 16 Abril 2020 06:14

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    A woman whose skin condition spiraled out of control after she stopped using steroid cream has laid bare how
    it has destroyed her life.

    Ineta Petraityte has been left housebound and in constant pain after developing topical
    steroid withdrawal (TSW).

    After years of using the drug to treat eczema, the 33-year-old's skin suddenly stopped responding to the treatment.


    Ineta broke out in red, weeping rashes and open wounds and developed an unbearable, deep itch.


    Her hair also severely thinned, she lost more than three stone and became too weak to stand for long.


    She spent her nights pacing in agony or lying on the floor in tears.


    The condition - which can occur when moderate or high-potency topical steroids have been used for a prolonged period
    of time - also put immense pressure on her personal life.



    Ineta had recently moved to Texas from London to be with her partner, but the relationship broke down shortly after
    her health began to decline.




    Ineta Petraityte, 33, spent years using steroid creams to
    treat eczema





    However, she has been left housebound and in constant pain after developing Topical Steroid Withdrawal (TSW).


    Your browser does not support iframes.

    'It's the most horrific thing I've been through,' Ineta said.



    'You literally have to grieve your old self because you'll never be the same again - it's very traumatic.


    'I couldn't leave my bed and didn't leave the house for
    three months.



    Read More

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    'This condition is dehumanizing.'

    Originally from Lithuania, Ineta had been using topical steroids on and off since she was
    16.

    But by the end of 2023, her eczema worsened, seeing her use the cream
    around five times a day for a year.

    Ineta claimed she was never warned of the long-term dangers of using steroid creams consistently.



    She said: 'I went and picked it up in the pharmacy without
    being checked by a doctor or dermatologist.


    'No one knows how much someone is using - that's where the problem stems from.


    'I had a stressful job that needed care and attention, and I used it for
    way longer than I should have.

    'I knew it was a strong cream but I definitely didn't know it thins
    the skin or would give me the horrific symptoms that it has done.'




    Originally from Lithuania, Ineta had been using topical steroids
    on and off since she was 16











    Ineta says the problem initially started as red rashes
    before developing into weeping skin. It then became dry and flaky and
    her hair started severely thinning

    Just over 31 million Americans, or roughly 10 percent
    of the population, have some form of eczema. 

    While many people with the condition use steroid creams to treat it, it is unclear
    how many users there are. 

    They work by blocking the inflammatory response in the skin, essentially
    dampening down the body's immune reaction that causes eczema flares. 

    TSW is a severe skin reaction that can happen when someone
    stops using steroid creams after long-term use.


    This is because long-term use of topical steroids can cause the body to become reliant on them, leading to a withdrawal reaction when the
    steroids are stopped. 

    This involves the body's response to a sudden lack of
    the steroids, potentially causing skin inflammation, redness, itching, and other symptoms. 

    It is unclear how many people suffer from the condition, but the National Eczema Society
    reports that 'doctors claim that it is rare'.


    In the US, warnings about TSW are increasingly being included in the labeling of topical steroid
    medications but it is not mandatory. 

    Ineta, who worked for a life coach company before she became unwell, says
    she had no idea what was happening to her body until Christmas 2024.


    A desperate Google image search led her to TSW.



    That's when it all clicked - the creams she'd been using were harming her instead of helping
    her.

    Ineta said the problem initially started as red rashes before developing into weeping skin.

    It then became dry and flaky and her hair started severely
    thinning.

    She said: 'My hair was touching my bum - it was nice and blonde.


    'Now it's just below [my] ears because I had to cut a lot of
    it off.'

    Sadly, Ineta is still in the grips of TSW and struggling
    with cracked skin, weeping wounds and itchiness every day.


    She recently moved to the Cayman Islands in the Caribbean to try 'sun and sea
    therapy'.

    While the saltwater stings her skin, she hopes the natural and warm climate
    will help her recover.




    The National Eczema Society says that although there are
    cases of TSW it should not cause people to stop using topical
    steroids





    Sadly, Ineta is still in the grips of TSW and struggling with cracked skin, weeping wounds and itchiness every day

    She has also set up a GoFundMe appeal to help fund her health journey.



    Ineta said: 'I have to vacuum the bed every morning because I leave a Hansel and Gretel trail of
    flakes everywhere.

    'I have complete insomnia now - I sleep every third night.


    'But I hope that my move to the Cayman Islands will see my
    skin improve.

    'After a challenging journey, I am now on the mend and steadily improving.


    'Recovery from TSW is often a slow and difficult process, but many - myself included
    - start to see real progress around the one-year mark.


    'It's important for others going through this to know that while the symptoms can be intense and debilitating,
    healing is possible with time.

    'I'm sharing my experience to offer hope and to raise awareness about the typical recovery timeline that so many in the TSW community endure.


    'Despite what I am going through, I take comfort in sharing my story because I want to
    help others.

    'People need to know that these creams offer temporary relief but potentially permanent regret.


    'Consult a doctor before you start using them.


    'One tube too far can scar for life.'

    The National Eczema Society said that although there are
    cases of TSW it should not cause people to stop using topical steroids. 

    It notes: 'With all medicines, we have to balance the benefits against the risks. 

    'Millions of people have used topical steroids safely over the past 70 years,
    and the long experience we now have with topical steroids
    shows that the benefits outweigh the risks. 

    'There are also many research studies into the use of topical steroids and the latest evidence on safety of
    topical steroids has been reviewed recently.'


    TexasLondon

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SOBRE NOSOTROS

La Fundación Sol de Primavera es un espacio en el accionar del conocimiento de las/los niñas, adolescentes, jóvenes de 13 a 22 años... Leer más

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